Showing posts with label Down Syndrome. Show all posts
Showing posts with label Down Syndrome. Show all posts

Monday, February 14, 2011

Baby Signing Works!

I've been working diligently with Xander on his language. He had very few words and we were concerned given his birth circumstances. (Omitted for his privacy.) We were also struggling with a lot of screaming, crying and temper tantrum behaviors. He was frustrated.. and so were we.

So I started reading everything I could. I remembered that when I was high school I babysat for a little boy named Robbie. Robbie has Down Syndrome and his speech therapist actually taught him sign language to start since children with Down Syndrome have large tongues and it can delay speech. He did learn to talk but in the meantime it served it's purpose.

I've seen sign language materials marketed for babies but I didn't want to invest a lot of money into a system for us. I figured it'd be my "luck" that I'd buy an expensive program and suddenly he'd talk up a storm.

Our library didn't have much and what they did have was checked out and already had a waiting list.

Soooo... I turned to You Tube. I've found over the years that you can pretty much find anything you could imagine (and things you don't care to imagine) on You Tube.

I put the keywords "Sign", "ASL" and whichever word I wanted to work on. When I found someone that was easy to understand and follow, I clicked on their user name to see what other videos they offered.

The first sign I taught Xander was "More." I was eating some fruit and he looked like he wanted some. So I offered him a taste. He loved it and grunted to tell me so. I said "MORE?" and did the sign and then gave him another piece.

Then he looked like he wanted more. So I took his hands and we signed hand over hand while I said "More." Then I gave him "more." We did this over and over. It was low key and low stress.

One night we were at the dinner table and Brandon gave him a bite of whatever we were having. I asked Xander "More?" and he signed! We all clapped. Every since then, he has used the sign.

The next sign I taught him was "Please." If he wanted something, I asked him to sign "please." We used the same kind of method and he started signing "please" on his own.

Then we turned it into a sentence. "More, please."

Next I added "All done." We say all done, but we actually use the sign for "finished" because it was easiest. When he is done eating, he signs "All done." If I'm giving him a treat and I'm done, I sign "All done." When I'm done changing his diaper or done bathing him, I do the same thing. We also use it at the end of storybooks.

The most recent sign I've taught him is "Thank you." At first he didn't like this one at all and it was pretty hard to teach him because it comes after he gets what he is asking for. So if he asks for "more please?" and then I give it to him, he had very little incentive to sign "Thank you!" But I kept asking and we cheered like crazy people the first time he did it without me asking.

Some people argue that you are delaying vocal speech if you teach your baby signs. I've seen the exact opposite. When I first started signing with Xander, he made almost no sounds with his signing. Now he vocalizes sounds that sound very much like the word he is signing. It's been amazing and we've not had near the temper tantrums and frustrations that we were experiencing before.

A few other things that I've learned:

- Just because your baby doesn't sign it perfectly doesn't mean they don't understand. Xander signs 'Please" by rubbing his tummy. The sign is supposed to be up higher on his chest. It's like a baby "mispronouncing" a word, like "Dankoo" for Thank You. It still counts! I do the signs properly and have learned to "understand" his signs like I learned to understand mispronunciations from my older children.

- Practice, practice, practice. I've taught my older children the same signs. So now they use the signs when they talk to him too. "Please?" is a common one that my girls ask of Xander. If he is trying to snatch, they ask him to "Say please?" and he signs back "please!"

- Use the words with the signs and soon your baby will be signing and talking too!

Father, I'm so thankful that Robbie was put in my path before I became a mama. You prepared me for this situation many years ago in Your wisdom. Thank you!

~Steph

Wednesday, February 9, 2011

A Year Ago..

A year ago, I comforted a beautiful friend of mine. She's further down the road in this journey called motherhood and I admire her greatly. She's the kind of friend that you can come to burdened and she picks you up, dusts you off, and sends you back out into the world. She gently gives advice. But she is no pushover. She is the kind of person that makes you want to be better, to walk closer to the Lord and to be a more patient mother.

And I've never met her in person. *gasp* I know! (Yet! Yet! I hope to change that this summer!) She is a fellow MOMYS (Mothers of Many Young Siblings, a fabulous site for Christian mothers of large families) and we've talked a good bit over the years online and even on the phone.

Anyway, back to a year ago. A year ago, we were both pregnant. I went for my ultrasound and it was uneventful. She went for an ultrasound and found out that she was expecting a baby girl that had a hole in her heart and later found out that she has Down Syndrome. She named her precious baby, Verity, which means Truth. (Oh... how the Lord speaks through names! Her name was chosen before her ultrasound appointment.)

My family has had the great pleasure of praying for Joe and Susanna, Verity and her other children. And now we have added their adoption prayer needs to our list.

But this post isn't about me and what I've done. This post is about what God has done. God has made Susanna an amazingly effective advocate for children with Down Syndrome and now her family is completing the process to internationally adopt another precious girl with Down Syndrome.

Why does she advocate?

Trust me, it isn't because she doesn't already have enough to do in her day.

You see, in America, 90+% of children with Down Syndrome are aborted and not given a chance to live. That number blows my mind and literally sucks the air out of my lungs. As a pro-life, Christian mother of four, it sickens me.

In other countries, almost all the children with Down Syndrome are placed for adoption, if they are not aborted. And if no one adopts them by the age of 5, they "age out."(Remember my "The Orphan Books" post?) They are taken from their "baby house" (orphanage) and institutionalized. A staggering amount of these precious children die within the first 2 years of their move.

Five.years.old.

My Julianne turns five this June.

A birthday that is highly looked forward to here (hey.. a whole hand is a big deal around our house!) is a terrible event in other countries.

Can you imagine someone giving up on you at FIVE? It nauseates me.

I didn't mean for this to be this long but as you can tell I'm disgusted at the treatment of the children. Statistics like this are the things that my nightmares are made of.

I really wanted to link you to her blog and encourage you to read what she wrote about what she wishes knew a year ago. It is important and life changing. It is the Truth. And when you look at the video you will see exactly what she is talking about. (Yes, the video is safe for young eyes that you may have in the room with you.)

Father, I love you. I have been watching this story unfold for a little over a year now.... and I've watched with anticipation and excitement. I know that each baby You knit is fearfully and wonderfully made, just as You tell us in Your Word. I am thankful for little Verity. She has already touched so many lives in her 7 months of life and opened so many eyes to You! Lord, strengthen my friend, Susie. Give Joe and Susanna wisdom as they are on this journey to adopt. Comfort their hearts as they wait for the paperwork to be done and the process to be completed. Protect their future daughter as she waits for her forever family! Thank you for connecting us. You've chosen some amazing friends for me, in Your wisdom. Open the world's eyes, Lord, open their eyes to the truth. Amen.

~Steph